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The ADHD Taskforce Report: Fixing fragmentation via data-driven transformation

Neurodiversity
20 November 2025 By Emma
ADHD Taskforce Report

Inaction is no longer an option. This is the clear message from the second part of the independent ADHD Taskforce report, published on the 6th of November, highlighting the historical neglect of ADHD care that now demands immediate system transformation. 

The report highlights how the cost of inaction in ADHD support is extremely high, both economically and ethically. The estimated cost for the UK is around £17 billion, with reports of wait times for diagnosis, in certain areas, being several years. 

The various negative consequences associated with unsupported ADHD are also highlighted, including economic failure, long-term unemployment, crime, substance misuse, suicide, and other physical or mental health conditions.

The ADHD Taskforce Report

The report makes it evident that the current system is not sustainable:

  • Services are severely fragmented with disconnected pathways causing issues (such as diagnosis made by one service not recognised by the others).
  • Failed information transfer between services leads to patients having to repeat their stories multiple times (which can be a draining process for anyone, and particularly for those struggling with neurodiverse challenges).
  • Health inequalities are also a major issue (with the report’s data highlighting access to support delayed for females and those from socially disadvantaged or minority groups).

This exposes a key issue: the path for help is not designed with neurodivergent individuals in mind, given the sheer energy and focus required to navigate it. This systemic failure is precisely what those with lived experience have highlighted.

The shift to needs-led support is necessary, it begins early, and doesn’t rely on or wait for a clinical diagnosis.

Digital tools that support improving data collection, quality and analysis around this are crucial going forwards.

Digital technology & data are needed for successful transformation

The ADHD Taskforce highlights that to achieve the necessary transformation, we need a comprehensive strategy supported by digital technology. Services need digital tools to create seamless care and eliminate fragmentation, with data to drive accountability and address health inequalities.

Mayden has been at the forefront of digital transformation for 25 years. Our specialist electronic patient record (EPR), iaptus, has evolved from supporting over 65% of NHS adult talking therapy services in the UK, to now also serving children and young people’s mental health and neurodiversity services. iaptus can offer direct solutions to the biggest challenges highlighted by the ADHD Taskforce’s report.

Eliminating fragmentation and repetition

The report highlights that disconnected pathways and failed information transfer are a major drain on patients and services.

  • Seamless digital pathway. iaptus’ digital care pathway provides a unified system for tracking and managing care, by enabling multiple linked episodes. If referrals come for your CYP service and your neurodiversity service for the same patient, you can link them together. This also allows you to easily report against the national dataset. Therefore, this eliminates the need for repeated patient history and ensures continuity of care.
  • Support network communication. Our patient support network initiative extends specific iaptus features to allow you to seamlessly communicate with a patient’s support network. This includes: family members, carers, or other professionals, to ensure timely and accurate information sharing, fulfilling calls for co-design.
  • Clear visibility. The system offers a real-time, visual overview of the entire service. This helps teams quickly identify bottlenecks and manage caseloads and referrals across different disciplines.

Data quality & accountability

Improved data collection is required to drive change. iaptus is designed to support this.

  • It integrates the necessary data reporting requirements for ADHD and autism referrals, assessments, and diagnoses as per NHS guidelines.
  • It enables MHSDS reporting of relevant codes at the click of a button.
  • Core dashboards monitor wait times and provide customisable reports to highlight areas where health inequalities may be present.

Supporting patients while they wait

The high-risk nature of long waiting times requires interim support.

  • Early digital intervention: iaptus enables the Taskforce’s recommended stepped-care model by supporting the delivery of early support. Interoperability with platforms like SilverCloud® by Amwell, provides instant, 24/7 support and continuous personalised care from referral to the appointment. This directly addresses the need for support uncoupled from specialist diagnosis.

iaptus offers the digital technology necessary to implement the independent ADHD Taskforce’s recommendations. Therefore, we can help transform the fragmented current system into a seamless, accountable, and accessible model of care.

If you would like to learn more about iaptus or talk to a product specialist to see how it could work for your service, you can book a short overview demo, or contact us.

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